Archive for the 'Develop Delays' Category

Reduce dependency on government by accurate assessment of children ages 3-21 who receive Social Security Disability benefits.

Wednesday, March 30th, 2011

Roughly 1 in 6 persons get a check in the mail from the government. That’s a huge number of people dependent on the government. It’s time to reduce that dependency.

Lots of people think that it’s wrong to cut social security. Yes, it’s wrong to cut benefits to those who paid into SSI, have retired and who rely on social security.

How to responsibly cut the federal deficit and encourage independence? Time to trim Social Security Disability benefits (SSI-D) to children and youth ages 3-21. Let’s reduce SSI-D payments to children and youth 1) assessed inaccurately or 2) who have “out grown” their diagnosis. Children change rapidly. Assessments should be accurate and up to date.

Another way to cut government deficits is to require proof of citizenship to obtain government funded services such as the regional center services. (The regional centers serve persons with low cognitive IQ abilities, requiring treatment similar to persons with low cognitive IQ, autism, seizures and cerebral palsy.) (more…)

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Supplements such as cod liver oil, melatonin (for sleep) and folic acid help children & adults with autistic spectrum disorders

Friday, March 4th, 2011

Sufficient, restful sleep and absorption of appropriate food is crucial to health and well being. True for every one and particularly difficult for many persons with autistic spectrum issues.

Remember grandmother – or mother – with the spoon of that awful tasting cod liver oil? Research shows that cod liver oil helps many children with autistic spectrum disorder difficulties. Ever had problems with jet lag and difficulties re-establishing a natural sleep rhythm? Melatonin is a natural enzyme your body produces which may be low or lacking in persons with autistic spectrum difficulties.

Many children and adults with autistic spectrum disorders have sleep and digestive disorders as well. Many are “picky eaters”. Many as children had constant diarrhea. Many have difficulties falling asleep and difficulties staying asleep.

What help is there? Autism Research Institute compiles information from parents as to what helps. Go to Autism Research Institute and take a look at the non drug supplements that help.

Of note, cod liver oil made 55% Better and 4% Worse for N = 2,550
folic acid made 45% Better and 5 % Worse for N = 2, 505
melatonin made 66% Better and 8% Worse for N= 1, 687

Of course, first consult with your pediatrician and read the literature.

Please comment what works for your child or spouse with autistic spectrum issues. What about the liquid vitamins? What about iron supplements?
DrCameornJackson@gmail.com

sharebookmarx Supplements such as cod liver oil, melatonin (for sleep)  and folic acid help children & adults with autistic spectrum disorders

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Big changes for CA regional centers: 2 hr. emergency response, 1 to 62 ratio staff to clients, transparency in government, audits …

Thursday, February 17th, 2011

Look for big changes in how California regional centers conduct business based on changes in the law. All sorts of information must be made readily available to the public via the Internet. Staff to consumer ratios will ensure a certain level of service. All contracts between $250, 000 to $500,000 must get separate audits. All contracts larger than $350 K must be reviewed and approved by the board.

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New CA law 4629.5 requires that 85% of regional center money be spent on DIRECT services (assessment, diagnosis, clinical services) and only 15% go for administrative costs.

Thursday, February 17th, 2011

So how can the public see the books for the 20+ non-profit California regional centers? What changes will the 4629.5 law have?

Some CA regional centers have lots of administrators — called district managers — who do not provide direct services. So will regional center district managers become service coordinators in order to keep their jobs? That would be one way to reduce the huge case loads!

sharebookmarx New  CA law 4629.5 requires that 85% of regional center money be spent on DIRECT services (assessment, diagnosis, clinical services) and only 15% go for administrative costs.

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How to rein in costs for persons with developmental disabilities in CA which doubled in last 10 years?

Thursday, February 17th, 2011

Standardization throughout the regional centers of Purchase of Services (POI) is a major way to contain costs.

Why not have an Internet method for regional center employees to suggest ways to reduce costs? The social workers who set up the POI’s probably have some excellent ideas how to reduce costs. So, ask the regional center social workers!

Once a regional center client — always a regional center client?

Some regional centers make little or no effort to exit persons who never belonged or who no longer are substantially disabled. Bad publicity and administrators think it a waste of time and resources because the Fair Hearing process is skewed in favor of the claimants.

Hence, the legislature needs to set a clear policy how all regional centers can exit clients who no longer are substantially disabled.

How? Every school age child who receives regional center services has a school Individual Education Plan. The legislature could require schools to automatically supply copies of 3 year re-assessments to the regional centers for review. And set up a standard method to exit children from the regional center based on progress made in school and regional center provided services. (more…)

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Autistic Spectrum Disorder combined with ADHD symptoms is associated with greater impairment in executive functioning and adaptive abilities

Thursday, January 13th, 2011

DrCameronJackson@gmail.com

About half of all children with Autistic Spectrum Disorder (ASD) also have Attention Deficit Hyperactivity Disorder (ADHD) or some symptoms of ADHD either inattentive, hyperactive or combined.

Common symptoms of the inattention form of ADHD are: the person often has difficulty organizing tasks and activities; is often forgetful in daily activities; dislikes tasks that require sustained mental effort such as homework; often loses thing necessary for tasks or activities; easily distracted by extraneous stimuli; does not seem to listen when spoken to directly; has difficulty sustaining attention in tasks; and makes careless mistakes.

Children and adults who have some ADHD symptoms and Autistic Spectrum Disorder tend to have exacerbated impairment in adaptive behavior, working memory and general executive functioning . How do we know this? (more…)

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How well does the ADOS assess for autism in adults? How might Obama perform on an ADOS?

Sunday, November 14th, 2010

3211273691 bdf4e77b1a m How well does the ADOS assess for autism in adults? How might Obama perform on an ADOS?

How might Obama perform on an ADOS test for autistic spectrum disorders?


Let’s imagine what might happen were President Obama given an ADOS assessment. An ADOS is administered one-to-one — not done here.

What the ADOS is:
The ADOS assesses for autistic spectrum disorders. Adolescents or adults assessed with an ADOS are asked to do various tasks including: 1) play interactively with the person who is assessing; 2) demonstrate how to do an activity; and 3) tell a story based on a picture book which has no words.

One ADOS task is engaging in interactive play that involves joint attention and ability to change based on what the other person does. President Obama seems to engage in a lot of “my way or no way” behavior which is not interactive. When President Obama got the stimulus bill signed he immediately turned it over to Speaker of the House Nancy Pelosi to figure out how to distribute the “pork”. President Obama did not wield his mighty pen and interactively “cut” out pork. Overall global assessment: As Obama’s abilities to interactively “play” appear low, he gets a score of 2 for the joint interactive task.

A second task on the ADOS: The person must demonstrate both verbally and non-verbally how to do something in daily life. Getting bills such as ObamaCare passed has been part of President Obama’s daily life. Can you imagine President Obama — without a teleprompter — explaining with use of gesture and words how he got ObamaCare passed? On the demonstrate a Daily Activity task Obama scores another 2. The total score is now 4 points.

A third task on the ADOS: The person assessed must tell a story based on a picture book that has no words. So, imagine a picture book showing the Tea Party movement at various rallies. How might Obama tell that story? Can Obama see a series of pictures and make a coherent story about a major political event, i.e. the Tea Party movement? Doubtful. Hence, on the Tell a Story task President Obama gets another score of 2.

On just three ADOS tasks Obama is already up to a total score of 6. There are about 12 or so tasks on the ADOS.

Let’s hypothetically assume that President Obama can meet the ADOS cutoff score for a possible diagnosis of an autistic spectrum disorder. More information is necessary to assign a diagnosis of autism or some variation.

The foregoing gives you an idea of the kind of tasks persons must perform during an ADOS assessment. (more…)

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Aptos, CA psychologist: Do you have an adult child who needs their parent to make most decisions? Think about a Limited Conservatorship if in California….

Wednesday, October 27th, 2010

DrCameronJackson@gmail.com

Do you have an adult child in California who substantially – very different from others his or her age — cannot do what society typically expects a young person to do?

For example, let’s say you have a son or daughter age 25 who has never held a part time job more than a couple months, who still lives with you or in a separate space you pay for, who has no real friends, who cannot cook more than microwave and who cannot make normal decisions that young persons make at that age?

Are you in effect still acting as the parent in charge although the adult child is moving along in age — but quite delayed?

What to do?

Think about a Limited Conservatorship as one vehicle that might assist.

For those who can, of course you can contact your personal attorney.

You need to know that there are free (govt paid for) or relatively low cost alternatives:

For example, SPIN in Santa Cruz County, supported by your tax dollars, offers workshops which assist families with children with developmental disabilities and delays.

Tonight SPIN (10-26-2010) in Watsonville, California held a meeting (6:30 – 8:00) with an attorney present. The meeting was to provide legal information concerning Limited Conservatorships.

I am a licensed, clinical Ph.D. psychologist. I attended the SPIN meeting because I had referred a couple families and on occasion I write reports recommending Limited Conservatorships.

As I could not stay for the entire SPIN meeting (10-26-2010) regarding Limited Conservatorships here is some info — perhaps it was not provided — concerning how to get a Limited Conservatorshp.

This is not legal advise. This is based on my experience as a licensed clinical psychologist interacting with families who need to exert control over the affairs of adult children:

There is FREE assistance for families who need to assist adult (over age 18) persons who cannot manage their life without family or other assistance.

What you can do:

Using Google:

1) type into Google” California Judicial Council Forms
go to: Browse All Forms
type in: Probate – Guardianships and Conservatorships
Download appropriate forms for Conservatorships
2) not know what forms to download?
3) go to the Law Library in Santa Cruz (in the Court House, basement, there is an attorney there to assist you).
4) With assistance from the attorney, file the forms with the County clerk of SAnta Cruz, CA
5) Get a Hearing Date stamped on your legal form by the County Clerk of Santa Cruz County.
6) Be sure to “ Notice” the Regional Center - learn what that means with assistance from the lawyer provided by Santa Cruz County
7) With a Hearing Date, Notice and what you are requesting (how many of the usual 7 powers are you requesting be removed from your adult child) in my experience the regional center near you in CA will respond to Superior Court
icon cool Aptos, CA psychologist:  Do you have an adult child who needs their parent to make most decisions? Think about a Limited Conservatorship if in California....   In my experience, when Superior Court requests a California regional center to provide a Limited Conservatorship that report will be provided in a timely manner.

A Limited Conservatorship is one vehicle that may assist parents who need to provide basic assistance to adult children. There are other vehicles. If you need more information or assistance, contact Dr. Cameron Jackson DrCameronJackson@gmail.com 831 688-6002 P.O.Box 1972, Aotos, CA 95002-1972

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Therapy center rather than a mosque at Ground Zero proposed by Drums and Disabilities

Tuesday, September 21st, 2010

Excellent idea to have a therapy center rather than a mosque at Ground Zero. See recent article in New Patriot Journal 9-19-2010 by Cindy Chafian reprinted from The Daily Right.

Bad idea to make therapy free — better to make it sliding scale and everyone pays according to an agreed on formula.

Instead of Hollywood stars and well known folks, get community involvement and require parent/family participation from all using the center.

It works fine to have some pay more. The proposed therapy center at Ground Zero needs to attract families with money and stability and connections who want to get behind the goals of the project. Get those people on the board.

Again — don’t make it “free”.

The above advise is based on my five years experience starting and running a child care center in Santa Cruz, CA to assist homeless families get on with their lives. The name is Calvary Childcare Center and – 20 years later – it is still serving the community.

I learned that children’s lives could be turned around with as little as 4 hours child care 2 days a week. I learned that ‘free-bees” are not the way to motivate people to change their lives.

The impulse and motivation of DAD’s offer are authentic. And the timing is right.

Just get the pricing right. And get personal involvement by every family served. I support the therapy center’s overall goals. And many, many people can get behind the idea. written by Cameron Jackson

See the following story about the proposed therapy center:

Non-Profit Organization Proposes Ground Zero Mosque Compromise

Written By: Cindy Chafian
Published: 9/19/2010

“New Jersey based Non-Profit organization Drums and Disabilities is prepared to move forward with plans to build a state of the art therapy facility in the location where the Ground Zero Mosque is currently slated to be built.

“Weeks ago, Pat Gesauldo, an accomplished, award-winning drummer and CEO of D.A.D. presented Governor Patterson, New York City Mayor Michael Bloomberg, Imam Faisal Rauf and property owners Sharif El-Gamal, and Hisham El-zanaty with his proposal, timeline and plan to build the center.

The State-of–the Art Therapy Center will offer free physical and cognitive therapy services for children whose parents were victims of the 9/11 terrorist attacks, the Police, Fire, and Rescue workers who might now be disabled, and for the wounded troops from the Tri-State Area.

As of yet, no one from Governor Patterson’s or Mayor Bloomberg’s office has even bothered to return calls from Gesualdo about joining efforts to reach a less controversial use of one of the last remaining buildings directly impacted by the attacks from 9/11. (The top of the building was damaged by the landing gear from one of the planes during the attack.)

Property owners Sharif El-Gamal and Hisham El-zanaty as well as Imam Faisal Rauf recently turned down Donald Trump’s offer of $6 million to purchase the building, claiming that the building was worth almost 4 times that amount.

Gesualdo respects the right to build the mosque in this location but feels that his idea would be a much more reasonable compromise for the community and country. He describes the facility as one that “will be funded by our own organization, our own community, and our own Government. Additionally it will offer free therapy services for special needs children whose parents were victims of the 9/11 terrorist attacks, the Police, Fire and Rescue Workers, and wounded troops.”

Gesualdo has reached out to Trump hoping to join efforts and his support as well.

Through private, state and federal grants and donations, Gesualdo is willing to come to the table with an offer of $12 million. This is double what Donald Trump came to the table with last week. and a 3 times the amount the current owners purchased the property for a little over a year ago.

Critics of Gesualdo and his plan have raised questions as to the timing, funding and motivation of his proposal. He addressed those concerns with me in an interview yesterday.

The Daily Right: There are those who would question why you have chosen now to get involved. Why have you chosen now to build the center? What motivated you to propose your center here vs. somewhere else?

Gesualdo: I have been searching for a building to build a DAD Program Therapy Center in the Ground Zero area and lower Manhattan for 3 years. What not a better location then to offer our free therapy services for 9/11 victims? This building is the last remaining building that was directly damaged by one of the planes as it flew into the twin towers. No one should tear it down, whether it be the mosque developers, or an American construction company.

My motivation for this purchasing this specific building is because I offer a truly healing opportunity for this location. We help children and adults with Autism, Dyslexia, ADD/ADHD, Tourette’s, Aspberger’s Cerebral Palsy, Muscular Dystrophy, ODD, OCD, and other disabilities, to develop retention, coordination, self-esteem, fine motor skills, and physical and cognitive functioning.

We currently offer our program, which is conducted by doctors, teachers, and special needs service providers in schools, hospitals, and community centers throughout the world.

TDR: You say that this facility will provide free therapy services for special needs children from those affected by 9/11 as well as military members and their family. How will your organization be able to provide these services free of charge?

Gesualdo: We plan to build a state-of the-art non-profit therapy center that would offer free therapy services for special needs children whose parents were victims of 9/11, free therapy services for the Police Officers, Firefighters, and Rescue Heroes who are now disabled as part of 9/11, and free therapy services for wounded troops from Walter Reed Army Medical Center, and the Wounded Warriors Project. We can offer our services to these victims for free, because we will offset the cost with other paid therapy services and income from this building. Additionally, we have a team of therapists willing to donate their services for free.

TDR: $12 million is a lot of money. How do you intend to raise the money if Trump or anyone else won’t get involved?

Gesualdo: I have countered Donald Trump’s original offer of $6,000,000.00 with my own offer of $6,000,000.00, to raise the purchase the mosque property at Ground Zero, with an offer of $12,000,000.00. I have recently invited Donald Trump to join forces with me in this effort, by using our combined donations. If he does not wish to join me, then I will raise the $12,000,000.00 through our own efforts of our non-profit organization, with part private and public funding.

TDR: You are hoping to raise the funds through the generosity of everyday American’s who are willing to support your vision. What happens if you raise the $12 million and those who currently hold the rights to those properties decide not to relinquish those right or move the Islamic center/mosque?

Gesualdo: I have put the offer on the table for mosque developers and leaders Imam Rauf, Sharif El-Gamal, and Hisham Elzanaty, and privately and publicly encouraged them to discuss this purchase price. I am not starting a fund raising effort now, and only will when the mosque developers accept my offer. At that time, and only at that time, will our fundraising campaign begin for the purchase of the mosque property. Our fundraising campaign and financial management is independently over seen from myself and the DAD Program, by a major CPA firm.

TDR: If those who claim to want to reach a reasonable solution to this controversial issue decide not to accept your generous offer, will you build your center in a different location? If so, won’t those who donated on behalf of the project being built at this specific location feel betrayed?

Gesualdo: I would be more then happy to build a therapy center, and offer the same services anywhere, and have been looking at different locations in NY, NJ, and CA. for the past few years. Each specific fundraising campaign will be focused for a specific location only. Therefore, the money raised from the fundraising campaign to purchase the mosque property, will be used to purchase the mosque property only. A fundraising campaign for the Mosque property will begin when the mosque developers agree to a purchase price with me, and at that time only.

TDR: How can you guarantee that the money donated by everyday American’s will be used for the purpose they intended?

Gesualdo: The nice thing about working on this specific project, is that I want all people to feel they have some part in saving this building. Since we are a 501 (C)(3) non-profit organization, anyone who donates can use their donation as a write off. It is mandatory that everyone knows exactly how much money we have raised, and the current amount at all times, which will be disclosed publicly, constantly. Donors may also wish to remain anonymous. The fundraising campaign and financial management for the purchase of the mosque property at Ground Zero is independently over seen from myself and the DAD Program, by CPA Michel Karu and the major CPA firm of Levine/Jacobs & Company. We will also have a separate Board of Directors for the Therapy Center, which will be comprised of many of the celebrities, sports stars, executives, and community leaders, and police officials who currently take part in our program.

If those who are currently in the middle of the controversial issue surrounding the Ground Zero Mosque truly are interested in achieving a compromise that all communities are satisfied with, it would appear as though Mr. Gesualdo’s offer would achieve just that.

What better use of this property than a non-profit organization who has a proven track record of giving back to the community? This offer would enable those currently holding the rights to the property to put their money where their mouth is, so to speak. It would truly show the American citizens, all of whom were affected by the attacks from 9/11 in one way or another, that this Imam and his associates really are about mending fences,healing and moving forward.

If they reject this truly altruistic offer by Gesualdo and the D.A.D. program then it will show America and the rest of the world that they really don’t care what they feel, rather they are only in it for themselves.

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Aptos, CA psychologist: Why and How to Reform Social Security Disability

Thursday, September 9th, 2010

Here’s a case that illustrates why and how to reform social security disability.

Billy – not his real name – is a five year old boy. When age 3 he was diagnosed with Autistic Disorder and put on social security disability.

Billy’s parents have drug problems, are unemployed and have been in and out of shelters.

Due to neglect, Billy was removed by CPS and placed in a foster home 2 days a week. The other 5 days Billy lives with his mother in a shelter. His father’s where-abouts are unknown.

The care that Billy received 2 days a week for 10 months in a foster home was sufficient that Billy changed dramatically.

Billy changed from having no language to speaking in 4-5 word sentences, from not being potty trained to potty trained, from ignoring other children to seeking them out.

This child is not autistic and should not receive social security disability based on that or any other diagnosis. Currently, Billy has behavior problems and having missed considerable school is behind other students.

How to reform the system so children are not put on disability who should not?

There are some very simple ways to radically reform social security disability.

Judiciously limit who gets on social security disability to start with. Limit the time period to maximum of 1 or 2 years depending on severity. Make it clear that any new information that shows much higher functioning will automatically cut off the benefit.

Tell the family that the benefit automatically dies once the 1 or 2 years has passed. Make the family be the moving party to continue the benefit. Assess the child again prior to re-newing the benefit.

Legislative changes: Require that a copy of all 3 year school assessments is sent electronically to social security for review. Hire licensed psychologists as independent contractors to review cases.

Require that all California regional centers provide social security with electronic copies of psychological and medical reports.

These simple changes can reform social security disability.

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