Category: Health

Health of people related to Diagnostic & Statistical Manual (DSM) & psychology

Aptos psychologist: Obama-Care “one size fits all” mentality hurts part-time workers. Time to say No! to the Democratic congress?

During the 2008 election people predicted that a government run health plan would force many businesses to drop their health coverage for employees because they would not be able to afford plans that complied with government rules.

That is starting to happen. McDonald has given notice that it cannot continue to pay for mini-med plans. Obama-Care requires that 80 to 85% of premiums is spent on benefits.

Nearly 30,000 part time workers at McDonald’s get mini-med plans. And they get a decent beginning plan. For a premium of $32.30 a week a worker gets 100% of of visits to primary-care or specialists after $20 co-pay, 100% of prescription drugs after$5.00 co-pay and %70% of inpatient hospital services. Maximum annual benefit is $10,000.

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Heart bypass better than angioplasty – what is quicker is not better

For heart disease treatment, looks like surgery saves lives and better long term than angioplasty…

http://www.JewishWorldReview.com | (MCT) Tens or even hundreds of thousands of Americans are having coronary artery angioplasty and stenting every year when they should be having bypass grafts, and the result is an extra 5,000 or more deaths annually.

Patients and cardiologists frequently prefer angioplasty and the insertion of a stent to keep arteries open because it is quicker and easier, and patients go home sooner and return to work more quickly.

But new data from a major European-American study on more than 1,800 patients show that three years after the procedure, those who got stents were 28 percent more likely to suffer a major event, such as a heart attack or stroke, and 46 percent more likely to require a repeat procedure to reopen arteries. They were 22 percent more likely to die.

“This is one of the strongest studies yet demonstrating that, in advanced coronary disease, bypass has a real patient advantage,” said Dr. Robert Guyton, chief of cardiothoracic surgery at the Emory University School of Medicine, who was not involved in the study.

“This will change practice,” he said. “It may not reverse some of the use of stenting, but it is certainly going to slow it down and make people think. Stenting is a little bit easier on you and the return to work is quicker. But the benefits of surgery are more enduring and tend to emerge as time goes by.”

Dr. Richard Shemin, chief of cardiac and thoracic surgery at the University of California, Los Angeles’ Ronald Reagan Medical Center, echoed that view. “Surgeons have had a strong feeling that, over time, surgery would be better for the most complex forms of heart disease,” said Shemin, who also was not involved in the study.

“Anytime that you compare angioplasty and surgery, the longer you go, the better surgery looks,” said Dr. Michael J. Mack, first vice president of the Society of Thoracic Surgeons and a co-author of the study.

Coronary-artery bypass grafts, commonly called CABG (pronounced cabbage), were the first treatment for blocked arteries. In the procedure, a blood vessel removed from elsewhere in the body, most often the chest or the leg, is used to bypass the blocked area, providing a new channel for blood to flow to the heart.

Hospital stays generally last five or six days, and the patient can return to work after a few weeks.

In recent years, however, cardiologists have turned more and more to balloon angioplasty, in which a catheter is threaded through a blood vessel in the groin to reach the blockage and a balloon is inflated at the site to compress the plaque. Originally, that was all that was done. Then physicians began inserting bare-metal stents, spring-like devices that hold the artery open.

Hospital stays are typically overnight, and the patient can return to work after a couple of days.

More than 1.3 million Americans now undergo angioplasty every year, compared with 448,000 who undergo bypass, according to the National Center for Health Statistics.

The new study, reported Sunday at a Geneva meeting of the European Association for Cardio-Thoracic Surgery, is the first large trial to compare stenting and CABG directly. Called SYNTAX (Synergy between Percutaneous Coronary Intervention with Taxus and Cardiac Surgery), the trial enrolled 1,800 patients at 85 centers in Europe and the United States.

Patients were randomized to receive either angioplasty with stenting or bypass.

Patients were considered to have mild disease if they had a single blocked artery. Their disease was considered moderate or severe if they had a blockage in the left main artery — the primary artery supplying blood to the heart — plus blockage in one of the other three arteries, or if they had blockages in all three other arteries. They were also considered severe if they had very long blockages, arteries that were totally blocked, or “very tortuous, curvy arteries” that make angioplasty difficult, Mack said.

For patients with mild disease, the two procedures produced equivalent results, so angioplasty might be preferred because it is easier on the patient. Previous studies have also shown that such patients can be successfully treated with medical therapy alone. But the differences were much more dramatic for those with more severe disease, which is present in about half of all patients undergoing angioplasty in the U.S.

Dr. John Conte, associate director of cardiac surgery at Johns Hopkins Hospital in Baltimore, noted that it is now incumbent on physicians to make sure patients have all the facts before they undergo any procedure. “It’s absolutely amazing that the federal government and private insurers don’t insist on it,” he said. “Wouldn’t it make sense to do the right procedure the first time, rather than do it over and over and drive up the cost of healthcare? To me, it’s a no-brainer.”

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Aptos psychologist: Should we trust imam Rauf to build huge mosque building when he does not take care of numerous health violations such as bed bugs and moldy bathrooms?

Imman Rauf wants a mosque/ cultural center many stories high about 1/10th of a mile from Ground Zero.

Does it make sense to go forward with that huge Islamic mosque cultural project when Imam Rauf has 200 health violations elsewhere on a building for things such as bed bugs and moldy bathrooms? First take care of smaller issues before being intrusted with larger ones…. Read more.

Union City imam ordered to reimburse city $12,960 for cost of keeping off-duty cop at his building while fire alarm wasn’t working.
Friday, September 24, 2010
By JEAN-PIERRE MESTANZA
A state Superior Court judge ruled yesterday that the imam who is at the center of a controversial proposal to build a mosque and Islamic cultural center near Ground Zero must reimburse Union City for the salary of an off-duty police officer was on fire watch for nearly 10 days outside the building the Imam owns on Central Avenue.

The judge also ordered that the October rent money for the building be held in an escrow account until Oct. 19, which is the date that the city’s complaint against him will be heard in court again.

The delay is to allow time for the imam, Feisal Abdul Rauf, to make repairs on more than 200 fire and health code violations that Union City inspectors have found at the building.

“The goal here is to create a pool of money for either the property owner to use or the receiver to use,” said Judge Thomas Olivieri.

Rauf did not attend yesterday’s hearing.

His company, Sage Development, has until Oct. 9 to make all repairs – from eliminating bedbugs to fixing moldy bathrooms. The city will inspect again by Oct. 13.

The fire alarm system has been fixed, which is why the fire watch ended on Monday, officials said. But Rauf now has to pay the $12,960 the city spent on keeping a police officer outside the building on a 24-hour watch, according to the court ruling.

The city did additional inspections on Monday and found about 200 other health violations. It was not clear what the fine or punishment would be levied if those violations are not addressed.

The city is suing Rauf for failing to address more than 30 tenant complaints from 1996 to 2010.

Rauf’s attorney, Tomas Espinosa, said the timing of the lawsuit and hearings are suspicious since, according to him, all complaints and violations were addressed in 2007.

“There were no violations that were given notice until the problems with respect to the mosque in New York,” Espinosa said outside the courtroom. “What I believe is that it is clear that something attracted attention.”

Union City’s attorney, Christine Vanek, said he doubts that repairs will be made before the Oct. 9 deadline. “Based upon what they have submitted to date, we are not confident that that it is going to occur,” Vanek said

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Obama-ism like state-ism creates dependency on government and destroys freedom?

Social-ism. Commun-ism. State-ism. Now Obama-ism.

Obama-ism is another poliltical phiosophy created by a small elite and imposed on the masses beneath.

What does Obama-ism do? Obama-ism replaces independence and free choice decisions by individuals and states with dependence on the Obama federal government.

The result of Obama-Care? The federal government decides what health plan individuals and families can have. The government chooses for you.

What does Obama-ism as a political philosophy say about how to create jobs? That the federal government knows best how to grow jobs and how to stimulate the economy.

So what did Obama-ism say about managing a budget? Individuals have to have a balanced budget or declare bankrupcy eventually. In contrast, Obama-ism has run up the largest deficit in many, may years. The entire war in Iraq over the last 7-8 years cost 100 million less than Stimulus I which was spent in less than a year.

And so Obama-ism has run up a deficit in 1 1/2 years that too big for most people to comprehend. Three billion is a number that people cannot easily get a handle on. Our children’s children will pay for this deficit.

How to build a car? Obama-ism knows best. Now we have Government Motors instead of General Motors.

How to figure out what credit card to get? Obama-ism is creating another federal agency — the Consumer Financial Protection Agency. It’s sole job is to protect families in their financial transactions.

Under girding all of Obama-ism is arrogance, elitism and disdain for freedom and individual choice.

What is the goal of Obama-ism? This political philosophy foster dependence on Big Brother.

Obama-ism has little interest in communicating with the general public. Hence so few news conferences.

The news conference held 9-10-11 was replete with non-answers to soft ball questions.

When asked about Democrats that are running in opposition to Obama-Care the President replied that is what politicians have to do in the short run… What a lame answer.

The answer is that the American public rejects Obama-Care and does not want the Obama deficit paid for by their kids.

Are the masses rejecting Obama-ism?

written by Cameron Jackson
Monterey Bay Forum
www.freedomOK.net

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Aptos, CA psychologist: Support Islamic mosque in your back yard? Guided by Shariah law? Think twice.

Best to learn about Islamic Shariah religious law before imposed on you in your local American community.

Our young president Obama supports the legal right of a mosque close to Ground Zero. Whether wise to do it so is an issue Obama side-stepped.

Broaden the question to do you want a mosque in your back yard? Or put differently: Do you want Islamic Shariah law to rule in your local community?

One reason not to embrace mosques and Islamic law: Islamic law per the Koran supports marriage between first cousins. So what?

Marriage between first cousins can cause severe birth defects. Islamic Law — read the Koran — permits such marriages.

The Koran explicitly says NO to marriage between an Islamic man and his mother-in-law (wow!) And NO to marriage between an Islamic man and his daughters (my goodness!), his sisters and the Islamic man’s nieces.

However, it is OK according to the Koran for an Islamic man to marry his first cousin. So what’s so bad about marriages between first cousins?

Jewish and Christian religious law views such marriages as wrong.

Why do religions forbid sex between persons related by blood? Sex between persons related by blood is taboo. Why? birth defects result.

And it is just inherently wrong for men to take advantage of women that men have easy access to : nurse mothers, their sisters, his nieces etc. And — sexual relations between persons related by blood — has been a NO for thousands of years.

Half of the U.S. states makes first cousin marriages illegal. Do you want Islamic law to change these U.S. laws? Think twice about this.

See the following article below for more information:

written by Cameron Jackson
DrCameronJackson@gmail.com

“With all the talk lately about American prejudice towards the Muslim world, it might be interesting to discuss one aspect of their culture. It should be a topic of real concern for all American women. Concerned for their “fellow sisters” in that world.

The following is excerpts from an article written by Nonie Darwish, a Muslim author and lecturer, describing the hell Muslim women face in a culture geared strictly towards men. Here is a portion of her description:

“In the Muslim faith a Muslim man can marry a child as young as one year-old and have sexual intimacy with this child consummating the marriage by the age of eight.

“The dowry is given to the family in exchange for the woman (who becomes his slave) and for the purchase of the private parts of the woman, to use as a toy. Even though the woman is abused, she cannot obtain a divorce.

To prove rape, the woman must have four male witnesses.

“Often after a woman has been raped, she is returned to her family and the family must return the dowry. The family has the right to execute her (an honor killing) to restore the honor of the family.

Husbands can beat their wives ‘at will’ and not have to say why he has beaten her.

The husband is permitted to have four wives and a temporary wife for an hour (prostitute) at his discretion.

The Shariah Muslim Law controls the private as well as the public life of the women. In the Western world (America), Muslim men are starting to demand Shariah Law so the wife cannot obtain a divorce. He can have complete control of her. It is amazing and alarming how many Muslim women now attending American universities are marrying Muslim men and submitting themselves and their children unsuspectingly to Shariah Law.

By passing this on, enlightened American women may avoid becoming a slave under this law.

She recently authored a book, “Cruel and Usual Punishment: The Terrifying Global Implications of Islamic Law.Ms. Darwish describes the goal of radical Islamists as a goal to impose Shariah Law on the world, “ripping Western law and liberty in two.””

Born in Cairo and spending her childhood in Egypt and Gaza before immigrating to America in 1978, Darwish’s father had been killed leading covert attacks on Israel. He was a high-ranking Egyptian officer stationed with his family in Gaza. When he died, he was considered a “shahid”, a martyr for jihad. Her father’s posthumous status earned Nonie and her family an elevated position in Muslim society.

Darwish developed a skeptical eye toward her own Muslim culture and converted to Christianity after hearing a Christian preacher on television.

While Westerns tend to think that all religions encourage some form of the golden rule, Sharia teaches two systems of ethics – one for Muslims and another for non-Muslims. Building on tribal practices of the seventh century, Sharia encourages the side of humanity that wants to take from and subjugate others.

Sharia advocates executing people who ask difficult questions that could be interpreted as criticism. Sadly, while talk of an Islamic reformation is common and even assumed by many in the West, such murmurings in the Middle East are silenced through intimidation.

The alarming fact is that there are many in America disillusioned with life and Christianity and willing to accept Muslims as peaceful. Many are, but there is a growing number that are willing to shed blood in the name of Islam.

Ms. Darwish contends there is a growing movement in this country willing to shed blood in the name of Islam. “While Americans are busy erasing Christianity from all public sites and erasing God from the lives of children, the Muslims are planning a great jihad on America.”

“It is something for every citizen of this country to pay heed as many attempt to marginalize the growing threat.

* If you have enjoyed this column, may I suggest you scroll to the top of this page and press the “SUBSCRIBE” Box? It’s FREE. For past columns, press the “RSS FEED” Box. Thank you for your patronage.

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First cousin marriages between British Pakistani a ‘tradition’? So says Deborah Gabriel

On the website People With Voices Deborah Gabriel writes concerning British Pakistani who marry first cousins.

Gabriel, working on a Ph.D. in journalism, criticizes fellow British journalist Ed West for using ‘inbreeding’ instead of ‘consanquinity’ to describe marriage between British Pakistani first cousins.

After faulting West, Gabriel goes on to use the word ‘ tradition’ in a misleading way. She says that wearing Burka and marriage between first cousins are best described as Pakistani ‘traditions’. I disagree. Gabriel describes human behaviors – clothing and marriage habits – that are largely guided by Islamic religious law.

What are traditions? Some Brits regularly eat yorkshire pudding with their roast beef. Some Americans regularly go to 4th of July parades. Those are traditions. No legal or religious sanctions attach to persons who do not do those activities.

In some countries — and possibly in certain areas of the U.S. and Britain — Islamic religious law guides most aspects of life including clothing, marriage and sex. And huge sanctions may attach for breaking Islamic religious law.

In Saudia Arabia last year Shiria law upheld selling an 8 year old child to a 50 year old man. In Afganistan, a couple was stoned to death for having sex outside of marriage Homosexualaity is a capital crime under Sharia law.

A favorite cookbook of mine is 1000 Jewish Recipes by Faye Levy, published in 2000. This cookbook has no recipes for pork. Is Ms. Levy a racist or acting in a discriminatory manner by not including pork recipes? No. My Jewish cookbook lacks pork recipes precisely because ancient Jewish religious law guides modern Jewish food habits.

Similarly, wearing Burka and first cousin marriages between British Pakistanis are not best described as Pakistani ‘traditions’.

These behaviors are guided, possibly controlled, by Islamic religious law. Yes, some Pakistani women may say that they choose to wear Burka in Britain. A choice in Britain or the U.S. is not a choice for women in other parts of the world.

I have heard it said that Islamic law affects all decisions people make. And we all know instances where things do not go well for those who break with Islamic laws.

A year or so ago, in Saudi Arabia a bunch of school age girls ran out of their school because it was on fire. The girls did not wear Burka. The girls were seized and thrown back into the burning building. The girls died because Islamic religious law caused some men to act that way.

Deborah Gabriel argues that first cousin marriages and wearing Burka by British Pakistanis are best thought of as ‘traditions’ and best dealt with similarly to the demographic shift in educated women to bear children later. She cites figures that older women age 40 have a 1% chance of having a Down’s Syndrome child. Pakistanis who are first cousins have a 6% chance of bearing a child with severe disabilities. If older women have choice to bear disabled children why not also British Pakistani who marry first cousins? The author uses medical authority for support for her view.

Does Gabriel think that Pakistani women who were bamboozled or intimidated into marriages have a real choice to say “No!” to more children with their first cousin husband? In general, Islamic women are very much second class citizens relative to the power and authority that Islamic men exert.

What will give real choice and freedom to British Pakistani women? Not having to do 24/7 total child care for severely disabled children is one way. And that way means knowing that marriage between blood relations is wrong for the children, wrong for society to pay the incredible expense and wrong for parents to bear the terrible grief.

If women know it is wrong then they will teach their daughters and sons that it is wrong.

I say to Deborah Gabriel, aspiring Ph.D. journalist, that she call a spade a spade. Use words accurately. Words are your craft as a journalist. Be precise with words.

Traditions are habits that people engage in by choice and desire. Traditions are not behaviors that must be done or sanctions may attach.

Gabriel may prefer the six sylable word ‘consanguinity’ to the word ‘ in-breeding’ but generally simple words say it best. ‘Related by blood’ says it simply and accurately.

First cousin marriages between British Pakistani is not a ‘tradition’. It is an unfortunate bi- product of ancient Islamic religious law.

The Prophet Mohammed had a number of wives. Five wives I believe. One marriage was consummated when the girl was age 9. Is that not child abuse? Another marriage was with a young woman whom he married the same day that he killed her father, brother and husband. How cruel can you get to deprive her of all close male relations? The Prophet in his personal behavior showed little respect for women.

With this kind of personal marital history — multiple wives with young girls and women taken through violence –probably the Koran condones behavior akin to what the Prophet did.

Back to author Gabriel’s assertion that marriage between British Pakistani first cousins is simply a ‘tradition’.

No, Ms. Gabriel. Read the Koran. Project Gutenberg has 3 versions of all verses. Book 4 verse 023 lists all persons a man is prohibited from marrying. The list is extensive including his mother-in-law and nieces. Not on the excluded list are first cousins. So, the religious law of Islam permits marriage by first cousins. This is not a ‘tradition’ — this is Islamic law.

From the Koran:

004.023 Y: “Prohibited to you (For marriage) are:– Your mothers, daughters, sisters; father’s sisters, Mother’s sisters; brother’s daughters, sister’s daughters; foster-mothers (Who gave you suck), foster-sisters; your wives’ mothers; your step-daughters under your guardianship, born of your wives to whom ye have gone in,- no prohibition if ye have not gone in;- (Those who have been) wives of your sons proceeding from your loins; and two sisters in wedlock at one and the same time, except for what is past; for Allah is Oft-Forgiving, Most Merciful;-

P: “Forbidden unto you are your mothers, and your daughters, and your sisters, and your father’s sisters, and your mother’s sisters, and your brother’s daughters and your sister’s daughters, and your foster-mothers, and your foster-sisters, and your mothers-in-law, and your step-daughters who are under your protection (born) of your women unto whom ye have gone in – but if ye have not gone in unto them, then it is no sin for you (to marry their daughters) – and the wives of your sons who (spring) from your own loins. And (it is forbidden unto you) that ye should have two sisters together, except what hath already happened (of that nature) in the past. Lo! Allah is ever Forgiving, Merciful.”

Written 8-28-2010 by Cameron Smith Jackson drCameronJackson@gmail.com

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Aptos, CA psychologist: intermarriage by Islamic 1st cousins leads to children with serious defects

Who or what encourages Islamic fist cousins to marry?

In England, Islamic parents who are first cousins have horrific rates of serious birth defects. In England, it is hard to believe — but true — that one third (33%) of rare recessive gene defects are caused by a so few people (1.5 %). Is this Islamic culture or is it because of their laws?

See story below:

Tazeen Ahmad’s grandmother gave birth to six daughters and three sons. Five of the six daughters died and all three sons were born deaf. Why? Because of an unspoken tragedy which the Muslim world refuses to confront – intermarriage. Tazeen’s grandmother and grandfather were first cousins.

The consequences of intermarriage are that a disproportionate amount of children are born with massive birth defects. Tazeen Ahmad’s broadcast makes the case clearly: “..children of first cousins are ten times more likely to be born with recessive genetic disorders which can include infant mortality, deafness and blindness…British Pakistanis constitute 1.5 per cent of the population, yet a third of all children born in this country with rare recessive genetic diseases come from this community.” The cost of caring for children with birth defects is horrific, both emotionally and financially. Parents are reduced to prisoners in their own home caring night and day for their sick children; the strain doesn’t just affect the parents physically but emotionally. The most devastating thing in the world is to watch one’s children suffer. And the community in which these families live pays a high price as well – literally.

“On average, a children’s hospital will see 20 to 30 recessive gene disorders a decade, but one hospital in Bradford has seen 165, while British Pakistani children are three times more likely to have learning difficulties, with care costing about £75,000 a year per child.”

Yet, when Ahmad attempted to call attention to this horrific disaster, she met with a wall of resistance. Intermarriage is one of the tenets of Islam – ergo, to criticize intermarriage is to criticize Islam. And, as the Danish cartoonists discovered, that’s not such a good idea. When Ahmad approached 16 British MPs – all of whom had significant British Pakistani constituents – none of the MPs would go on the record. They were too afraid of the Muslim backlash. The Muslim community itself didn’t want to hear what she was saying – they also were afraid of offending the Muslim world by refusing to intermarry, even if it had bitter consequences for themselves as well as their children. Ahmad relates the all too typical tragedy of forced marriages. One young woman, “Zara” was blackmailed into intermarriage when her husband’s family in Pakistan “threatened suicide over loss of honour should she refuse to marry her cousin. She relented and lives in a deeply unhappy marriage.”

Nonetheless, Ahmad pressed on with the broadcast. She broke the wall of silence. It is hoped that her brave action will break the cycle of sick children. One can only hope.

http://www.dailymail.co.uk/health/article-1305078/TAZEEN-AHMAD-Three-uncles-deaf-Five-aunts-died-babies-Why-My-grandparents-cousins-married.html#ixzz0xkFWL0Ei

The greatest taboo: One woman lifts the lid on on the tragic genetic consequences of when first cousins marry
Sitting in the family living room, I watched tensely as my mother and her older brother signed furiously at each other. Although almost completely without sound, their row was high-octane, even vicious.
Three of my uncles were born deaf but they knew how to make themselves heard. Eventually, my uncle caved in and fondly put his arm around his sister.
My mum has always had a special place in her family because she was the first girl to live beyond childhood. Five of her sisters died as babies or toddlers. It was not until many years later that anyone worked out why so many children died and three boys were born deaf.
Today there is no doubt among us that this tragedy occurred because my grandparents were first cousins.
My grandmother’s heart was broken from losing so many daughters at such a young age. As a parent, I can’t imagine what she went through.
My family is not unique. In the UK more than 50 per cent of British Pakistanis marry their cousins – in Bradford that figure is 75 per cent – and across the country the practice is on the rise and also common among East African, Middle-Eastern and Bangladeshi communities.
Back when my grandparents were having children, the med­ical facts were not established. But today in Britain alone there are more than 70 scientific studies on the subject.
We know the children of first cousins are ten times more likely to be born with recessive genetic disorders which can include infant mortality, deafness and blindness.
We know British Pakistanis constitute 1.5 per cent of the population, yet a third of all children born in this country with rare recessive genetic diseases come from this community.
Despite overwhelming evidence, in the time I spent filming Dispatches: When Cousins Marry, I felt as if I was breaking a taboo rather than addressing a reality. Pakistanis have been marrying cousins for generations.
In South Asia the custom keeps family networks close and ensures assets remain in the family. In Britain, the aim can be to strengthen bonds with the subcontinent as cousins from abroad marry British partners.
Some told us they face extreme pressure to marry in this way. One young woman, ‘Zara’, said when she was 16 she was emotionally blackmailed by her husband’s family in Pakistan who threatened suicide over loss of honour should she refuse to marry her cousin.
She relented and lives in a deeply unhappy marriage. But others told me of the great benefits of first cousin marriage – love, support and understanding. To them, questioning it is an attack on the community or, worse, Islam.
At a Pakistani centre in Sheffield, one man said: ‘The community feels targeted, whether that be forced marriages or first-cousin marriages. The community is battening down its hatches, not wanting to engage.’
As a British Pakistani, I am aware of the religious, cultural and racial sensitivities around this issue and understand why people would be on the defensive when questioned about it.
At times I was torn between explaining the health risks while privately understanding the community’s sense of being demonised.
But I have also grown up in a family that has suffered the medical implications and strongly believe that people should have the choice to make an informed decision.
Throughout I had to remind myself that this is a health story – nothing more. It is not about religion or cultural identity. It is about avoidable suffering such at that experienced by Saeeda and Jalil Akhtar, whom I met in Bradford.
They are first cousins and have six children, three with the genetic disease mucolipidosis type IV. This stops the body getting rid of waste properly and affects brain functions controlling vision and movement.
Mohsin, their second eldest, is 17 and blind. He wanders aimless and helpless, often crying in frustration. His sisters Hina, 13, and Zainab, 11, have the same condition. They live in almost complete darkness.
Saeeda is worn down from years of round-the-clock care. She spoon-feeds them, dresses them and fears for them. Neither she nor her husband can quite accept that their familial link is the cause of this pain.
This is a major public health issue that has huge implications for other services. The cost to the NHS is many millions of pounds.
On average, a children’s hospital will see 20 to 30 recessive gene disorders a decade, but one hospital in Bradford has seen 165, while British Pakistani children are three times more likely to have learning difficulties, with care costing about £75,000 a year per child.
However during this investigation we found no efforts to introduce any national awareness-raising campaign. Why?
We approached 16 MPs with a significant number of British Pakistani constituents for interview – every one declined. We asked 30 MPs with a high population of British Pakistanis
in their seats to give their views in a short survey. Only one, who wanted to remain anonymous, responded, saying anyone who tried to talk about it risked being attacked politically.
A lone voice was Ann Cryer, former Labour MP for Keighley, near Bradford, who said ‘fear of being accused of racism or demonisation’ prevented politicians speaking up.
It is not just British Pakistani families who suffer. Wayne and Sonia Gibbs are white and first cousins once removed. They had no idea this could lead to problems. Their daughter Nicole had juvenile osteopetrosis, a genetic disease that causes the bones to thicken and crush the body’s organs. Nicole died aged two.
The couple now know both carry the recessive genes that caused Nicole’s illness. They wanted more children – but had genetic counselling first. They have two healthy boys today.
I have travelled nationwide, meeting doctors and families whose lives are full of pain. To me the solution is simple: Ring the alarm bells loud and clear.
In Birmingham, one GP practice has taken radical action. The doctors have campaigned heavily to stop cousin marriages. They have introduced genetic screening and testing for patients, starting at 16, and now claim that very few cousin marriages take place there.
My mother tells me that, long before I was born, her siblings and their cousins decided their tragedy would never recur.
The conclusion some will draw is that cousin marriages should be banned. I disagree. But people must be able to make informed choices about the risks involved and options available, be they genetic screening, counseling or carrier-testing.
At least there should be leaflets in doctors’ sur­geries and school campaigns.
Meeting the families in the program upset me greatly. Every day for them was an uphill struggle, mostly because their children needed so much help and this put enormous stress on their family lives.
Yet this was avoidable. If this were any other health issue, politicians would have been out in force. But they are silent and as a result children continue to be born with terrible, prevent­able disabilities that are devastating their lives and those of their loved ones.

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“Public option” medical care coming your way not by choice? Look at Massachusetts …

Small businesses are America’s greatest source of new jobs. Historically that is. If small businesses cannot offer health insurance as cannot afford it what will that do to job creating? See below story from Kay Lazar.


Firms cancel health coverage
With cost rising, small companies turning to state
By Kay Lazar
Globe Staff / July 18, 2010

“The relentlessly rising cost of health insurance is prompting some small Massachusetts companies to drop coverage for their workers and encourage them to sign up for state-subsidized care instead, a trend that, some analysts say, could eventually weigh heavily on the state’s already-stressed budget.

“Since April 1, the date many insurance contracts are renewed for small businesses, the owners of about 90 small companies terminated their insurance plans with Braintree-based broker Jeff Rich and indicated in a follow-up survey that they were relying on publicly-funded insurance for their employees.

In Sandwich, business consultant Bill Fields said he has been hired by small businesses to enroll about 400 workers in state-subsidized care since April, because the company owners said they could no longer afford to provide coverage. Fields said that is by far the largest number he has handled in such a short time.

“They are giving up out of frustration,’’ Fields said of the employers. “Most of them are very compassionate but they simply can’t afford health insurance any more.’’

Precisely how many small businesses have recently given up offering insurance is hard to pinpoint. The Office of Labor and Workforce Development said the most recent quarterly insurance data collected from small companies has not been compiled.

State officials said they have not seen convincing evidence that there is a trend. There has not been an unusually large spike in enrollment in Commonwealth Care, the subsidized insurance program, according to spokesman Richard Powers. And in any case, Dr. JudyAnn Bigby, secretary of health and human services, said the administration budgeted for higher health care spending because it anticipated that there would be growing numbers of long-term unemployed residents who would be signing up for coverage.

The Massachusetts Division of Health Care Finance and Policy annually surveys employers and found no significant drop in coverage as of the end of 2009, when more than three-quarters of companies offered health insurance.

But insurance brokers say the pace of terminations has picked up considerably since then among small companies, of which there are thousands in Massachusetts. Many of these companies — restaurants, day-care centers, hair salons, and retail shops — typically pay such low wages that their workers qualify for state-subsidized health insurance when their employers drop their plans.

“Those employers are trying to keep their doors open, and to the extent they can cut expenses, they will cut health insurance because they know their people can go to Commonwealth Care,’’ said Mark Gaunya, president of the Massachusetts Association of Health Underwriters, a trade group representing more than 1,000 brokers and other insurance professionals.

The issue is coming to a head as the Patrick administration battles insurers over swiftly escalating rates they have been charging small employers. In February, the governor filed sweeping legislation that proposes to give the Division of Insurance the power to essentially cap health care price increases. That proposal is still pending.Continued…

And on April 1, exercising authority the administration had never before used, the division denied 235 of 274 increases proposed by insurers for plans covering individuals and small businesses — base premiums would have increased as much as 32 percent. On July 1, it again held 137 proposed increases to 2009 rates.

The sides have been locked in negotiations for months, with the Patrick administration recently reaching agreement with two insurance carriers on lower rates.

“The Patrick-Murray Administration has taken decisive action to provide small businesses and working families with immediate relief from skyrocketing health insurance premiums,’’ the governor’s press secretary, Juan Martinez, said in a statement. He declined to directly address whether small businesses are increasingly dropping health coverage and directing their workers to subsidized care.

But analysts said the burden of double-digit insurance increases shouldered by small businesses over the last several years is likely to become more of a public problem.

“The more the employer insurance system unravels, the higher the cost is going to be for the state in providing subsidies to low income workers,’’ said Larry Levitt, vice president of the Kaiser Family Foundation, a California-based think tank. “From a state finance perspective, stabilizing employer insurance is definitely important.’’

The state’s landmark 2006 health insurance overhaul included regulations designed to discourage low-wage employees from opting for state health insurance over their companies’ often more pricey coverage. It denied eligibility to any one whose employer had offered him or her coverage in the past six months and paid at least 33 percent toward the individual’s plan.

Most health care advocates and brokers had widely interpreted that to include even workers whose companies had dropped coverage. But recently, some companies that have terminated their group plans have tested those waters and found that their employees were accepted for state-subsidized coverage.

Additionally, company owners say, it has become far cheaper to pay the state penalty for not covering their workers — roughly $295 annually per employee — than to pay thousands more in premiums.

In New Bedford, the Early Learning Child Care center is now paying $1,500 quarterly in fines to the state, instead of the $30,000 it contributed quarterly toward 13 workers’ health insurance premiums. When Executive Director Judy Knox terminated the company’s health plan late last year, she asked Fields, the consultant, to help 10 of those workers enroll in Commonwealth Care. The other three went on spouses’ plans or were eligible for Medicare.

“We had had, in the three previous years, between 17 and 18 percent increases every year,’’ Knox said. “I was so worried about the staff and their coverage, but for most of them, Commonwealth Care seems to be working out very well.’’ The state program covers people with incomes up to 300 percent of the federal poverty level.

Come 2014, when the bulk of the federal health care law goes into effect, the penalties for small companies that do not provide health insurance coverage will be less onerous than those in Massachusetts. That could tempt more small companies to opt out nationally, sending more workers to the public rolls — if health care costs can’t be restrained, some analysts said.

“Struggling business don’t necessarily feel the need to offer coverage to attract workers,’’ said Kaiser’s Levitt.

Massachusetts has not decided whether to adopt the federal rules for small businesses.

The federal law does not impose any penalty on companies with fewer than 50 employees that do not offer coverage, whereas in Massachusetts, employers with more than the equivalent of 11 full-time employees face fines for not offering a health plan and contributing at least 20 percent toward that coverage. But for companies with more than 50 workers, the federal law comes down a lot harder than does the state law.

Kay Lazar can be reached at klazar@globe.com.

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Does angioplasty work for MS patients? 500 to enroll in clinical trail in New York …

Evaluate Treating Chronic Cerebrospinal Venous Insufficiency (CCSVI) in Multiple Sclerosis Patients

Verified by The Vascular Group, PLLC, March 2010
First Received: March 17, 2010 No Changes Posted
Sponsor: The Vascular Group, PLLC
Information provided by: The Vascular Group, PLLC
ClinicalTrials.gov Identifier: NCT01089686

Purpose
The purpose of this Study is to evaluate safety, feasibility and efficacy of percutaneous transluminal angioplasty in treating extracranial venous obstructive lesions, and its influence on the clinical outcomes of Multiple Sclerosis (MS) patients.

Patients enrolled in the study will have a diagnosis of Multiple Sclerosis diagnosed according to the revised McDonald Criteria (MD) criteria, and will meet the eligibility criteria.

Condition Intervention
Multiple Sclerosis
Procedure: Angioplasty

Study Type: Interventional
Study Design: Endpoint Classification: Safety/Efficacy Study
Intervention Model: Single Group Assignment
Masking: Open Label
Primary Purpose: Treatment
Official Title: Utility of Chronic Cerebrospinal Venous Insufficiency Percutaneous Angioplasty for Multiple Sclerosis: The Albany Vascular Group Study (Liberation Study)

Resource links provided by NLM:

MedlinePlus related topics: Angioplasty Multiple Sclerosis
U.S. FDA Resources

Further study details as provided by The Vascular Group, PLLC:

Primary Outcome Measures:
•Incidence of major adverse events [ Time Frame: 30 days ] [ Designated as safety issue: Yes ]
The evaluation of safety will be defined as the incidence of major adverse events at 30 days following the index procedure. The evaluation of feasibility and efficacy will be determined by those patients that do not have more than 50 percent restenosis within the 30 day time frame.

Secondary Outcome Measures:
•Mortality [ Time Frame: 2 years ] [ Designated as safety issue: Yes ]
Secondary endpoints will be evaluated with all subjects based upon mortality, incidence of all secondary interventions and incidence of all major adverse events for a period of 2 years.

Estimated Enrollment: 500
Study Start Date: April 2010
Estimated Study Completion Date: April 2012
Estimated Primary Completion Date: April 2012 (Final data collection date for primary outcome measure)

Intervention Details:
Procedure: Angioplasty
To identify the presence of CCSVI, all patients will undergo a clinical evaluation by a neurologist, a duplex ultrasound of central extracranial venous system, an MRV, and a venogram. The decision to enroll patient in percutaneous angioplasty for CCSVI will be made at the time of venogram, in select patients that have greater than or equal to 50 percent stenosis of the extracranial central veins including the internal jugular veins and the azygos vein. Extracranial venous ultrasound will be performed at 3, 6, 12, 18, and 24 months following the procedure or if clinical symptoms recur. MRV and venograms will be performed at 12months and 24 months or if clinical symptoms recur.
Eligibility

Ages Eligible for Study: 18 Years and older
Genders Eligible for Study: Both
Accepts Healthy Volunteers: No

Criteria
Inclusion Criteria:

•Greater than 18 years of age
•Diagnosis of Multiple Sclerosis by a neurologist
•Presence of greater than or equal to 50 percent stenosis of the extracranial veins as determined by venogram
•Informed consent signed by patient or LAR
Exclusion Criteria:

•Patient is unwilling to comply with the follow up
•Patient is pregnant
Contacts and Locations

Please refer to this study by its ClinicalTrials.gov identifier: NCT01089686

Contacts
Contact: Megan Wilcox, LPN 518-218-7909 wilcoxm@albanyvascular.com

Locations
United States, New York
The Vascular Group, PLLC, The Vascular Pavillion
Albany, New York, United States, 12205
Sponsors and Collaborators
The Vascular Group, PLLC
Investigators
Principal Investigator: Manish Mehta, MD, MPH The Vascular Group, PLLC

More Information

Additional Information:
The Center for Vascular Awareness

No publications provided

Responsible Party: The Vascular Group, PLLC ( Manish Mehta, MD )
Study ID Numbers: LS10-01
Study First Received: March 17, 2010
Last Updated: March 17, 2010
ClinicalTrials.gov Identifier: NCT01089686 History of Changes
Health Authority: United States: Institutional Review Board

Keywords provided by The Vascular Group, PLLC:
Chronic Cerebrospinal Venous Insufficiency

Additional relevant MeSH terms:
Pathologic Processes
Autoimmune Diseases
Multiple Sclerosis
Immune System Diseases
Demyelinating Diseases
Nervous System Diseases
Venous Insufficiency
Vascular Diseases
Demyelinating Autoimmune Diseases, CNS
Cardiovascular Diseases
Sclerosis
Autoimmune Diseases of the Nervous System

ClinicalTrials.gov processed this record on May 13, 2010

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coffee worsens MS symptoms? One man with MS says so …

Can coffee be a culprit in MS symptoms? Can eliminating coffee help MS sufferers?

Read the comments from MS patients which include one who curred his MS by eliminating caffeine — coffee — from his diet and supplementing with other dietary aides. He hypothesizes that muscle spasms due to caffeine usage caused the blockage in his neck veins …. no more coffee and no more MS symptoms for him.

Italian doctor may have found surprisingly simple cure for Multiple Sclerosis
By Loz Blain

A Major Breakthrough in the treatment of MS

“An Italian doctor has been getting dramatic results with a new type of treatment for Multiple Sclerosis, or MS, which affects up to 2.5 million people worldwide. In an initial study, Dr. Paolo Zamboni took 65 patients with relapsing-remitting MS, performed a simple operation to unblock restricted blood flow out of the brain – and two years after the surgery, 73% of the patients had no symptoms. Dr. Zamboni’s thinking could turn the current understanding of MS on its head, and offer many sufferers a complete cure.

Multiple sclerosis, or MS, has long been regarded as a life sentence of debilitating nerve degeneration. More common in females, the disease affects an estimated 2.5 million people around the world, causing physical and mental disabilities that can gradually destroy a patent’s quality of life.

It’s generally accepted that there’s no cure for MS, only treatments that mitigate the symptoms – but a new way of looking at the disease has opened the door to a simple treatment that is causing radical improvements in a small sample of sufferers.

Italian Dr. Paolo Zamboni has put forward the idea that many types of MS are actually caused by a blockage of the pathways that remove excess iron from the brain – and by simply clearing out a couple of major veins to reopen the blood flow, the root cause of the disease can be eliminated.

Dr. Zamboni’s revelations came as part of a very personal mission – to cure his wife as she began a downward spiral after diagnosis. Reading everything he could on the subject, Dr. Zamboni found a number of century-old sources citing excess iron as a possible cause of MS. It happened to dovetail with some research he had been doing previously on how a buildup of iron can damage blood vessels in the legs – could it be that a buildup of iron was somehow damaging blood vessels in the brain?

He immediately took to the ultrasound machine to see if the idea had any merit – and made a staggering discovery. More than 90% of people with MS have some sort of malformation or blockage in the veins that drain blood from the brain. Including, as it turned out, his wife.

He formed a hypothesis on how this could lead to MS: iron builds up in the brain, blocking and damaging these crucial blood vessels. As the vessels rupture, they allow both the iron itself, and immune cells from the bloodstream, to cross the blood-brain barrier into the cerebro-spinal fluid. Once the immune cells have direct access to the immune system, they begin to attack the myelin sheathing of the cerebral nerves – Multiple Sclerosis develops.

He named the problem Chronic Cerebro-Spinal Venous Insufficiency, or CCSVI.

Zamboni immediately scheduled his wife for a simple operation to unblock the veins – a catheter was threaded up through blood vessels in the groin area, all the way up to the effected area, and then a small balloon was inflated to clear out the blockage. It’s a standard and relatively risk-free operation – and the results were immediate. In the three years since the surgery, Dr. Zamboni’s wife has not had an attack.

Widening out his study, Dr. Zamboni then tried the same operation on a group of 65 MS-sufferers, identifying blood drainage blockages in the brain and unblocking them – and more than 73% of the patients are completely free of the symptoms of MS, two years after the operation.

In some cases, a balloon is not enough to fully open the vein channel, which collapses either as soon as the balloon is removed, or sometime later. In these cases, a metal stent can easily be used, which remains in place holding the vein open permanently.

Dr. Zamboni’s lucky find is yet to be accepted by the medical community, which is traditionally slow to accept revolutionary ideas. Still, most agree that while further study needs to be undertaken before this is looked upon as a cure for MS, the results thus far have been very positive.

Naturally, support groups for MS sufferers are buzzing with the news that a simple operation could free patients from what they have always been told would be a lifelong affliction, and further studies are being undertaken by researchers around the world hoping to confirm the link between CCSVI and MS, and open the door for the treatment to become available for sufferers worldwide.

It’s certainly a very exciting find for MS sufferers, as it represents a possible complete cure, as opposed to an ongoing treatment of symptoms. We wish Dr. Zamboni and the various teams looking further into this issue the best of luck.

Via The Globe and Mail.

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» Brain» Cure» Medical» Multiple Sclerosis» Nerves» Research» Surgery
User Comments (60)

A very positive development, thanks to my Italian brethren!… toot-toot!

Facebook User
– November 26, 2009 @ 04:11 am PST

An amazing new, and an amazing information tool as well. Worth any web surfing time to delight you discovering top research and insights on science and technology.

Best wishes.

Gonzalo

Gonzalo Villouta
– November 26, 2009 @ 05:11 am PST

God willing.

Jennifer Schroeder Zordan
– November 26, 2009 @ 06:11 am PST

I hope this works out, but something is setting off my skeptic alarm.

For one thing, 73% of 65 people is 47.45 people. So lucky Mr. 48 was cured on his right side only?

Anyway, I look forward to more detail.

Frac
– November 26, 2009 @ 07:11 am PST

You’ve got to wonder how many other such simple procedures there are???!!!

David Mahan
– November 26, 2009 @ 08:11 am PST

What is disturbing is the fact that fellow Mser’s are so desperate for a cure that they tend do avoid asking the right questions when it comes to these “miracles”. What if 95% or so people with MS have this condition because it’s a cause/symptom of MS, and not the cause of MS? I do not want to seem pessimistic, but I would reserve judgment for when more data is available.

Ted Nehme
– November 26, 2009 @ 05:11 pm PST

This wouldn’t be the first time excess iron has been implicated in disease. It’s well known that too much iron is a risk factor in atheroschlerosis, which is why male-specific multivitamin supplements no longer contain iron. There’s even some evidence excess iron increases the risk of cancer.

Spirit of 76
– November 26, 2009 @ 09:11 pm PST

65 people plus his wife makes it 66 people.

73% makes it 48.18 people.

I think the reporter probably meant “more than 72%” and then simplified by writing in 73 instead of writing in 72.7272%

Joe’s Cat
– November 26, 2009 @ 11:11 pm PST

…and that’s not the only new from italy; there is a young guy, Matteo Dall’Osso ( http://www.matteodallosso.org/ ), who healed himself from MS against all doctor’s opinion (except Dr. Zamboni, who helped him too), just by depuring (in a special way) his body from metals (he has got a metabolic disease that avoid his body to dispose off metals at a normal rate).

So it seems that MS could be the result of metallic accumulation in the body, due to a cause (vein occlution) or another (metabolic disfunction).

The real risk about these MS treatments is that they are too economical, simple and they were not discovered by a big pharmaceutic multinational; big opposing economic interests are able to prevent the diffusion of such discovers. Help the web spread the good news.

Mario Maio
– November 27, 2009 @ 04:11 am PST

please adjust my previous post with the following link to english version of Matteo Dall’Osso web site

Home

Mario Maio
– November 27, 2009 @ 04:11 am PST

J & J, – does this make sense to you?

Debby Baker
– November 27, 2009 @ 08:11 am PST

As the spouse of someone with MS I can tell you that this news has overwhelmed our Thanksgiving. Of course, it came out when it is impossible to get in touch with our specialist. I am sure that she, and every other neurologist/MS doc in the country (if not the world), is going to come back from the holiday to emails and phone calls from their patients.

I too am concerned about the pharmaceutical industry’s response to this. If you could see the level of coordination around establishing new clients for each drug type you’d be astounded. There really are only four mainstream medications for MS at this point. All involve injections (daily, semi-daily, weekly) although there are pill form versions in the pipeline (kind of like Duke Nukem:Forever for the MS crowd). But none of them really alleviate symptoms…they are all about reducing future attacks and the increase in symptoms.

This procedure points to a reduction of symptoms that most MS patients only see following strong IV steroid, and then only temporarily. While I don’t expect this procedure to cure my spouse immediately I do expect to have our doctor(s) examine it deeply and with great urgency. If they do anything less we will find another doctor who is more willing.

As we’ve both said, if this were any other kind of vascular blockage there wouldn’t even be a discussion. If a doctor said that the veins in your brain were blocked (and said nothing about MS) wouldn’t you ask if that blockage could be cleared? It can, by a relatively simple procedure. We only want the same response. I see many visits to cardiologists in our future. And I am looking forward to it.

Nothing Knew
– November 27, 2009 @ 08:11 am PST

The really really really good thing about this is it finally seems to have PROVEN what I’ve been saying for almost twenty years.

Believe it .. or .. not ..

Jesus Was A Vegetarian!

http://tinyurl.com/2r2nkh

Facebook User
– November 27, 2009 @ 09:11 am PST

Mario Maio says this is an economical treatment. Since when is brain surgery economical?

Things are not usually simple and I am glad we allow “cures” to be looked at critically before jumping on the bandwagon.

Verena
– November 27, 2009 @ 10:11 am PST

What else can we do just to push the simple MRV testing? I just want to get the word out there/

Maria Christodoulou
– November 27, 2009 @ 12:11 pm PST

I’m curious, could vein blockage be associated with weight gain? I gained weight recently and was then recently diagnosed with migraines and then multiple sclerosis. I know that there are plenty of people with multiple sclerosis who are not significantly overweight like I am (I’m ~250 lbs.) but I wonder if perhaps some of us wouldn’t have acquired MS except for such “supplemental influences” as weight gain?

I do struggle with sleep apnea in accordance to my weight gain, too. I wonder if perhaps the same stuff that makes sleep apnea happen (blockage of airflow due to being so fat) can also result in blockage of veins (blockage of bloodflow due to being so fat).

stimpy77
– November 27, 2009 @ 01:11 pm PST

Amazing! Finally someone researches this disease from a new prospective!

Brittny Macphee
– November 27, 2009 @ 01:11 pm PST

Amazing == a potential cure for multiple sclerosis. Two years ago my Tucson doctor discovered that I had high iron levels and recommended giving blood in order to reduce the iron level — no one wants my blood. Fortunately (or not) the health misadventures of 2008 resulted in blood loss and thus reduction in iron levels.

Facebook User
– November 27, 2009 @ 06:11 pm PST

Verena,

This isn’t brain surgery. They don’t have to open up your skull or anything. It’s strictly a balloon angioplasty and it’s even easier because they can enter through the jugular vein close to the brain. A cardiac angioplasty with stents can cost $20-30,000, but in that procedure, they have to go in through the femoral artery in the leg and thread their way up to the heart then around to cardiac blood vessels. Also, MS drugs can cost that much in a single year, so if this actually works, it is definitely more economical.

Spirit of 76
– November 28, 2009 @ 05:11 pm PST

The treatment is now undergoing further investigation – more here from the BBC: http://news.bbc.co.uk/2/hi/health/8374980.stm

Loz
– November 28, 2009 @ 09:11 pm PST

I can’t help but be skeptical because there are MS treatments that do work (they don’t cure but they definitely help the problem) by directly affecting the auto-immune system. I am on Copaxone, for example, and Copaxone’s role is in changing the inflammatory nature of the body’s antibodies. (I’m no medical scientist, I’m a new patient, so forgive me for my inaccuracies in word choice.) It sounds like this new “cure” has nothing to do with the body’s autoimmune system, which makes me wonder how it is that Copaxone makes any difference at all?

stimpy77
– November 29, 2009 @ 05:11 pm PST

It’s not that the medical community is “slow to adopt revolutionary theories”, it’s that we take an oath to “do no harm”, and for new theories scientifically prove to a statistical confidence that a treatment has benefits that outweigh the risks. There *are* risks to angioplasty, including infection and tragically, stroke, so this treatment needs to be proven.

As someone who sees MS patients for optic neuritis, this would indeed be a great breakthrough if the University of Buffalo study confirms with statistical significance and confidence that venous insufficiency is a causal factor for some MS patients, and angioplasty has a benefit worthy of its risk.

Standing by for the science,

Doc Rings

matthew.rings
– November 29, 2009 @ 05:11 pm PST

Also food for skepticism, why does MS statistically show up more in high-altitude regions? Some assumed that certain viruses might be more likely to thrive in high-altitude areas, and my own assumption was that high altitudes, or particularly high latitudes, have less sunlight, hence less vitamin D, hence D deficiency, which leads to autoimmune disorders.

So if indeed MS has a one-to-one relationship to the narrowing of the veins, how can high altitudes & high latitudes have any relationship to that? Theories?

stimpy77
– November 29, 2009 @ 06:11 pm PST

this is a very cool site…amazing technology and scientific inovation

Stephanie Boulianne
– November 29, 2009 @ 07:11 pm PST

Following up on my own ponderings, http://csvi-ms.net/en/content/ccsvi-huge-breakthrough-ms hypothesizes that vitamin D has a direct correlation not only on the autoimmune system but also on the vascular system’s development.

stimpy77
– November 29, 2009 @ 07:11 pm PST

I hope that this treatment from Italy does work out. I mean it obviously has done for some already. What I am pondering over though: Is the whole thing symptom relief or dealing with the cause? If this stricture causes MS, what causes the stricture? And although I am in favour of different (and non-toxic) approaches to solving problems I do believe that MS is an autoimmune disease and people won’t get it (or an array of other autoimmune diseases) if they have a strong immune system. I (with PPMS) take LDN (low dose naltrexone) which is a safe, cheap, out of patent drug which boosts/strengthens/modulates your immune system. People have found relief with LDN (and stopping progression, attacks, tumour growth and more) for a vast number of diseases, including cancers. How come it’s been there for nearly 30 years and hardly anybody knows about it? It’s because there is no money in it, so it’s being kept hidden from the ones who need it most, the suffering patients. Just google LDN and find out about it. I was so lucky to have discovered it and with it the over 100,000 other users. (I agree, I don’t know them all personally, honestly! But many of their stories are all over the internet!) It’s fantastic and what it does is logical, it makes the body heal itself. Silvia

Silvia Lane
– November 30, 2009 @ 04:11 am PST

I am an M.S patient for 18 years. And an M.S researches for 10 years. I am electronic engineer and a university teacher. If you look in Google for Dr. Fernandez Noda and the syndrome Cerebellar Thoracic Outlet Syndrome (CTOS) you will find again a strong relation between blood flow in the brain and M.S symptoms. Fernandez Noda looks for global blood flow from the brain. The veins coming from the brain to the heart enter the atlas vertebra and cross to the C6 and C7 vertebra where the veins go out the vertebrae in their way to the heart. In the outgoing they can be squashed by the sternocleido-mastoideos muscles. Dr. Noda makes a simply operation to liberate that pressure and some M.S patient get better.

I am convinced we can find a solution. I do not have so clear that we can make the solution to go on because the opposition from pharmaceuticals will be uninimaginable.

They are earnig bigs amounts of money whith not-a-solution-at-all. And what they do not want at all is loosing theier clients! We are clients, very goog clients, for them -not patients-. I have a web page http://webs.uvigo.es/xuliofh/entrega2/pagPpalEM.html with some information about M.S. (in spanish 🙁 )

Xulio Fernández Hermida
– November 30, 2009 @ 08:11 am PST

I read many of the comments. two maybe 3 with MS, newly diagnosed, a couple of doctore, then arm chair mathematicians.

As I have had MS for 14 years, take injections every other day, for 14 years at now, at cost of 2400.00/month for one med. Most of you can go ________. I am in luck though, with exercise, diet, family and attitude, I am completely mobile. I can not say it is due to the fact of betaseron, it only slows the progression, I wouldn’t know, I’ve never been off off the stuff. I do know the shots hurt, that’s where the attitude goes bad.

If you are not part of the problem, stay away from a possible solution. Show me your creditentials to give your opinions, not just cutting an article to shreds. Go bore people who care.

L Tate

Ltate
– November 30, 2009 @ 10:11 am PST

Interesting

Didier Noel James
– November 30, 2009 @ 10:11 am PST

Actually, I have a hypothesis of MS which suggests simpler treatment that might be less invasive. Human pheromones cause MS. In which case about 150 to 250 mg of healthy adult male facial skin surface lipid p.o. (the face kissing pheromone from your dad), should halt symptom advances. Epigenetic (low-dose chemo) therapy in concert with pheromone treatment while watching sad movies, should fix it for sure. Take 3 5 packs of regular gum, sugarfree, wipe 5 pieces per day on dad’s face, both sides (of his face and of the gum), until you have got 15 to 25 pieces. Now chew the gum. (Of course, make sure Dad’s healthy.)

So how does the Italian surgery work? Do his patients kiss his face a lot? The blood has chemosensitive proteins in it that alter conformation on contact. The angeoplasty might be affecting that somehow. Perhaps this surgery will cure MS like knee replacement cures arthritis? Hope so.

TogetherinParis
– November 30, 2009 @ 09:11 pm PST

Trolling on a post about a potential treatment for a debilitating disease? Especially one that has been peer-reviewed and is currently being tested by independent groups? Wow.

I bet you go to abuse support groups and tell them to “get over it” or drop in at cancer wards and suggest they “think happy thoughts”. You are a beautiful person. See, I can use sarcasm too.

Nothing Knew
– December 1, 2009 @ 07:12 am PST

Zamboni is partially right, some symptoms are, without a doubt, caused by a vascular blockage in the neck region. He just forgets to figure out, what might be the cause to the blockage.

In my case the blockage was caused by spasticity of the neck muscles.

The spasticity in it’s term was caused by porphyrines, released from skeletal muscle cells breaking down.

Cell breakage was caused by chemical imbalance inside the cells.

The chemical imbalance was caused by excess activity of exicatory neurotransmitters, which regulate those pumps.

Excess activity of exicatory neurotransmitters was caused by daily caffeine consumption.

I suffered from ms-symptoms for 20 years. The symptoms were many times so sevbere, that I was unable to get out of bed without help, and with help it took an hour or so, and I was soaking wet of sweat, and crying. In the last phase, I was able to walk short distances very slowly with a walking stick.

I stopped my caffeine habit feb 2008, now I’m totally free from alla symptoms. I am also on alcalic diet and take supplements, E-Epa, carnosine etc..

So, my ms was caused by a chronic poisoning, brought upon me by my drug dependence. I lost more than 20 years of my life in a hell on earth, I’m almost totally recovered now, feel like I was 20, but I’m 55, and the party’s pretty soon over for me.

Facebook User
– December 2, 2009 @ 01:12 am PST

This is exciting news to hear, thank you Aaron for sending me the artical.

Sally Simpson
– December 3, 2009 @ 04:12 am PST

Amazing News. Just an idea but if its caused by blocked veins perhaps nattokinase suplements could help?????

silverneedle
– December 4, 2009 @ 03:12 pm PST

Ok so if this is correct then I have something to throw into the pot. As a teenager I had problems with Iron Deficiency on my blood, so I was fed Iron supplements for many years. What I wonder is, how many people with MS were fed the same Iron supplements. I don’t even want to start thinking there’s a cure at this time, I’m tired of let downs. I’ve read a lot in the past few years about things that can cure MS and at every tunr it falls through.

To the doc above, it may well be that you took an oath to ‘not harm’ anyone. As an MS sufferer I really don’t care, if there is anything out there that has any potential to help me than I want to try it. If it kills me then so be it, after all, it’s just down to how long I want my death sentence to be.

This ‘cure’ has a couple of things that jump to my mind that should really be added to the mix. For me I already said about the iron given to me when I was young, but also I have an additional complaint called Factor 5 Leiden deficiency wich makes the blood clot more than in a normal person. This has given me many vascular problems, including a severe DVT last year for which I am still suffering. I am taking Warfirin for an undetermined length of time to keep my co agulation down.

So to sum up, this ‘cure’ talks about Iron (check) and vascular problems (check). I’m scared to say it but this seems to have a lot of bells ringing for me and what I want to know is, when the hell are the medical profession going to add this up and let people like me try it.

Has a survey been done to see how many MS sufferers have had Iron supplements given as a child? Or would the medical profession who ‘do no harm’ be scared to to that and find out that the very supplement we were given could have contributed to this. I don’t care what caused it, I just want out.

My mum had that balloon thing done through her groin for hardening of the arteries and she’s absolutely fine.

April Prior
– December 7, 2009 @ 05:12 am PST

I have been following this with extreme interest. The article above is good but very brief and there is so much more to it… so if you want more of the story please visit this site and watch the video:

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091120/W5_liberation_091121/20091121?s_name=W5

I also recommend watching all the interview videos to the right of the page for more details. This all becomes more clear and sooooo exciting. It is being taken seriously for sure.

Pam1234
– December 7, 2009 @ 02:12 pm PST

This really does sound promising, and while it is important to err on the side of caution with new treatments, this could be a step in the right direction.

Hal London
– December 8, 2009 @ 08:12 am PST

Sadly enough I’ve passed the stage of Relapsing Remitting….-do you guys think

Secundary Progressive patients have any hope or anything to look forward to??

Facebook User
– December 8, 2009 @ 12:12 pm PST

Hope!

Atticus Finch
– December 26, 2009 @ 01:12 pm PST

For the person who wondered about how the higer altitudes make a difference – the air pressure can effect the blood vessels in the brain and in your whole body – pressure or lack of – can cause blood flow changes – so, that may help explain – especially when going from low to high and back.

Laura Ashley Wheeler
– December 29, 2009 @ 07:12 pm PST

Also food for skepticism, why does MS statistically show up more in high-altitude regions?

THAT is easy.

The altitude causes higher blood cell production and therefore the viscosity of the blood becomes thicker.

The blood doesn’t flow.

Much like the blood flow from the brain when the veins become stricted.

Facebook User
– January 3, 2010 @ 12:01 am PST

This is very interesting, is there any operations done in the U.S. My girlfriend’s Mother has MS. Where can i find more info on this?

Thanks

Kyle Ericson
– January 3, 2010 @ 01:01 pm PST

i have a few questions i need answerd.

for my self i have had thrombosise since i was 17 also low in iron plus i have other medical problems.But we have now learnt that my daughter has m.s we no there is not a lot known about m.s they say it is not passed on my daughter was born with a heart murmer and wene she went on to cows milk as a toddler i would put pentervite into her milk for her supplements she was poorly as a toddler always had a cold and soar ears and throate.could some one please let me no if i did something wrong and this is why she has it.

Caroline Sare
– January 3, 2010 @ 03:01 pm PST

Here is the info for US:

“Letter from Dr Michael Dake

Thank you for your inquiry regarding our work on blockages of the veins of the head and neck associated with multiple sclerosis. I wish I could talk personally with each person to explain our ongoing work, but in order to provide a prompt reply to all, I must respond by email. Currently, we are planning a clinical study to rigorously assess the risks and benefits of balloon angioplasty with or without venous stenting in the setting of multiple sclerosis. This controlled format for study will allow all patients to receive endovascular therapy if desired, but will provide a better evaluation of the risks, benefits and indications for different approaches to treating the vein blockages associated with multiple sclerosis.

Please be assured that we will keep your contact information on file and provide periodic updates of our progress until such time as the trial commences . At that point, we hope to be able to speak with you regarding your interest to participate in this clinical study. We anticipate embarking on the study early in 2010. I wish to extend my appreciation to you for your understanding and forbearance as we proceed with deliberate speed in our attempts to develop a multi-disciplinary, collaborative controlled study that will truly advance our understanding of the science underlying the association between venous disease and multiple sclerosis.

I hope to have the opportunity to speak with you in the future.

Sincerely,

MICHAEL D. DAKE, M.D.

Professor, Department of Cardiothoracic Surgery

Stanford University School of Medicine

Falk Cardiovascular Research Center

300 Pasteur Drive

Stanford, CA 94305-5407″

One of my patients is considering that option. When and if he does, I will be able to ascertain the efficacy of the method myself.

Dr. Dimitri Rimsky

Neu-Wellness Institute

Dr. Rimsky
– January 4, 2010 @ 04:01 pm PST

I was just diagnosed and find this fascinating. When I had a physical 8 years ago, my doc told me to stop taking a multi-vitamin with iron because my levels were at the highest end of safe. Interesting.

Laurie Erdman
– January 5, 2010 @ 09:01 am PST

Hmmm… I wonder if there is any corelation of patients with MS and those with Haemochromatosis (an excess of iron in the blood) (or if this hypothesis holds water, If not, why not ?)

Bryn Parrott
– January 8, 2010 @ 11:01 pm PST

Does this new theory hold water if the ms sufferer had actually spent there life being iron deficient, and not taking iron supplements. I have been iron deficient my whole life but, apart from a two month period during a pregnancy where I had iron injections, I have not take iron supplements. Could a blockage in the veins still lead to a damaging build up of iron in the brain, in these circumstances?

Tara Slater
– February 12, 2010 @ 02:02 am PST

hi, i am a patient from dubai (u.a.e) with advanced level of M.S, right now am taking 3 injections of rebif 44 every week for almost 7 years. Hereby i request you to please provide me your full address to enable me to contact you for your medical invitation to come to you for the treatment

your earliest reply is highly appreciated

best regards

hussain mustafa. my contact number as below

mobile no-00971506467089

office no-0097142255422 fax no-0097142254515

hussain
– February 12, 2010 @ 12:02 pm PST

In http://ajdem.mforos.com/1138091/8283791-la-dieta-del-dr-swank-en-el-tratamiento-de-la-esclerosis-multiple/ it can be read “Otra de las novedades en el tratamiento de la Esclerosis Múltiple es el uso de los campos electromagnéticos. Aquí es muy importante aclarar que los campos electromagnéticos que se utilizan, en este caso, son a una intensidad de picotesla, con frecuencias extremadamente bajas y detenidamente controladas. Estas aplicaciones son extracraneales y se dan durante 20 minutos, una vez a la semana.

Hasta hoy, todos los pacientes con Esclerosis Múltiple que han sido tratados con esta clase particular de campos electromagnéticos, han mejorado en forma inmediata y dramática. Su mejoría no sólo fue subjetiva, sino totalmente objetiva.”

It talks abaut treating M.E. patients with electromagnetig fields applied in the head and the good resoults obtained with it. And I think that this resoult can be related with the one of Dr. Paolo Zamboni in this paper. The electromagnetic fields what sure do is shaking the iron particles in the blood making this way more easy for them to move along the veins (like removing dirty water in order all the particles go out with the water).

I am electronic engineer and I consider it will be interesting that Dr. Zamboni consider this point!

Thank you very much

Thank you

xuliofh
– February 16, 2010 @ 01:02 am PST

Skepticism is definitely in order! There are way too few details in this article to know whether this is a promising treatment. It could in fact be harmful.

The study doesn’t seem to include any comparison groups, and without a comparison standard, it’s impossible to draw conclusions from any study.

Specifically, they didn’t screen for venous blockage in a group without MS to see if the blockage is unusually common in MS patients or just common across the board (from other studies, we know that venous blockage is a common condition, so you really need a comparison group to see if it’s MORE common in MS patients).

AND in assessing the treatment, they didn’t have an untreated control group to see how the treated patients’ experience compares with the natural history of MS. Having hope and a sense that something is being done can have a powerful impact on the course of disease and could explain the 2-year remissions experienced by many of the patients. You need a control group to see if that’s what’s happening. I teach public health students how to be careful readers of the medical literature, and my students would tear this article to bits.

I’ve had MS for decades, and I’d love to think that this is a real breakthrough in MS treatment, but with the amount of info provided here, I’m deeply skeptical. I’m afraid that this is more wishful thinking than real progress — and could be dangerous if people adopt this unproven approach and abandon treatments that have been proven to be effective.

Mary Applegate
– February 18, 2010 @ 11:02 pm PST

“CCSVI” is junk science.

The Zamboni Myth: Why “CCSVI” is Surreal

Colin Rose
– February 20, 2010 @ 03:02 pm PST

I am 36 yrs old and was diagnosed with MS two years ago. I have also been diagnosed with two of the genes that cause Haemochromatosis. Co- incidence? Either way its very interesting.

Facebook User
– February 21, 2010 @ 01:02 am PST

An intresting article, I am 26 and was diagonised with MS 3 years before. I am thinking of getting a councelling with yoga gurus to automatically unblock these vessels thru yoga excercise, If I get any improvement, I will definetly inform you guys.

Facebook User
– February 27, 2010 @ 07:02 am PST

Ridiculous these posts about pharmaceutical companies blocking this. Just when have they ever blocked a proven treatment and how would they do that? You listen to too many demagogues and snake oil salesmen. You’re probably hysterical about Toyotas, too, because you cannot do the math.

Ronald Warrick
– March 11, 2010 @ 02:03 pm PST

Wow that actually makes sense dude.

Lou

www.whos-watching.es.tc

Facebook User
– April 11, 2010 @ 11:04 am PDT

“Also food for skepticism, why does MS statistically show up more in high-altitude regions? Some assumed that certain viruses might be more likely to thrive in high-altitude areas, and my own assumption was that high altitudes, or particularly high latitudes, have less sunlight, hence less vitamin D, hence D deficiency, which leads to autoimmune disorders.

So if indeed MS has a one-to-one relationship to the narrowing of the veins, how can high altitudes & high latitudes have any relationship to that? Theories?”

Perhaps it is due to changes (evolutionary or short-term) that would occur in either groups of people or individuals when they inhabit higher altitudes. High altitudes tend to be mountainous and cold, so I can see there being some benefit to the people there developing smaller blood vessels to better retain heat. If this were true, you would expect a correlation between MS and people who live in, AND who have ancestry in high altitude places.

Also, do you know if our blood vessels constrict to keep in heat when it’s cold? If so, that could also work as a functional explanation that would explain the increased rate of MS in both people who currently reside in high-altitude areas, as well as those who have a heritage of living there.

Angus James
– April 11, 2010 @ 01:04 pm PDT

Very interesting news. Hope is so important.

Some comments.

Most medicine is “junk science”. Look no further than the Cholesterol hysteria.

MS is not more frequent at high altitudes. It’s more frequent at high latitudes. Northern coun tries like Canada have many more MS patients than southern ones like mexico.

The vitamin d hypothesis is a good one. Taking 3-4 000 iu of Vit D a day can’t hurt. Getting as musch sun as you can get may be helpful too.

Richard Albert
– April 12, 2010 @ 11:04 am PDT

I have recently come across your article about MS saying that it may not be auto-immune after all. I think that is wonderful news, as I have been diagnosed with MS myself about 3 yrs. ago. Currently, I am not taking any meds for it; everyone in my family thinks I should be…..I keep telling them I am going to take this MS and kick it into outer space somewhere, where it can NO LONGER hurt anyone. I would GREATLY APPRECIATE hearing back from you.

e-mail me back and we could exchange phone numbers…I live in the USA, and would love having the procedure performed… however I do not know what you charge for such.

Tabitha Pollock Hershberger
– April 19, 2010 @ 06:04 pm PDT

I really hope that this may lead to something,i’m going to talk about it with my neurologist, i’m wondering what he will say.

Inge Vanhoorne
– April 28, 2010 @ 10:04 am PDT

This is a whole new approach for treating the patients with Multiple Sclerosis. In recent days it has become a new hope for millions of Multiple Sclerosis patients across the world. Dr. Paolo Zamboni, a former vascular surgeon and professor at the University of Ferrara in northern Italy developed this procedure while he was trying to understand the underlying causes for the condition which his wife was into, a Multiple Sclerosis patient.

Doctors and hospitals across the world are developing necessary infrastructure and the expertise required to perform this procedure with good outcomes.

In India few of the doctors at Internationally Accredited Hospitals have already started performing this procedure with excellent outcomes as per international standards. These doctors have developed a multidisciplinary approach involving Neurologists, Neuro-Surgeons, Cardiologists, Cardio-Thoracic Surgeons and Interventional Radiologists. The doctors are abreast of latest developments in this field and continuously in touch with the inventors of this procedure. They are continuously monitoring the procedure outcomes of their patients over a period of time.

Why should you choose India?

In India this procedure is done with excellent outcomes by expert team of doctors at Internationally Accredited Hospital at a cost which is much lower than it would cost you in USA, UK or Europe. Indian Hospitals provide you high quality service and compassionate care and has a world class infrastructure. India is well connected with the world by International flights.

How can you get started?

The first step is to determine whether a patient is a good candidate for this medical procedure or not?

All you need to do is to send the following information to us.

1) MRI of the Cervical (neck region )

2) Doppler Ultrasound of the neck

3) A general medical status and history

We will show these information to our expert doctors and get a opinion from them to you, totally free of cost.

Do not worry if you do not have the above mentioned medical information readily available with you. We have specially designed evaluation package for this procedure. The evaluation can be done here in India on outpatient basis at much lower cost. Based on the findings of the evaluation further line of action can be taken.

Just write to us at help@safemedtrip.com for more information and help.

The Procedure

It all started with the Dr. Paolo Zamboni’s search to find out the root cause of debilitating condition of his wife who was suffering with Multiple Sclerosis. After studying many patients suffering from the same condition, he found that that almost all of them had a narrowing, twisting or outright blockage of the veins that are supposed to flush blood from the brain.

Further Dr. Paolo Zamboni found that whichever patient had this condition, had a high level of deposition of Iron in the veins. Lack of free flow of the blood to the brain possibly explaining the symptoms of MS. Now the idea was to open up such blocks and allow the free flow of blood through veins to brain. This is the reason why this procedure is called as Liberation Procedure. This is done in the similar way as it is done in Coronary Balloon procedure. The patient may have single blockage or multiple blockages. Accordingly the treatment is decided.

safemedtrip.com
– May 6, 2010 @ 12:05 am PDT

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